Hawkesbury Disability Forum Inc. |
||||
Home |
Community Organisations |
|||
Hawkesbury Disability Directory Accommodation
Services
|
|
Acquired Brain Injury Group
(Seekers)
Shop 10 Orange Grove Mall, Windsor Street, Richmond NSW 2753 Phone: (02) 4588 6222 Fax: (02) 4588 6322 Email: seekers@pnc.com.au Web: Office Hrs: Tues, Thur & Fri 8.30am to 3.30pm Leisure and recreation service for adults with an acquired brain injury. Provides out of hours respite care for adults with an acquired brain injury. Activities may include dining out, ten pin bowling, barbeques and picnics. Telephone support is also provided. Alzheimers Association of NSW P O Box 6042 North Ryde NSW 1670 Phone: (02) 9805 0100 Fax: (02) 9805 1665 Email: admin@alznsw.asn.au Web: http://www.alzheimers.org.au/ Alzheimer's Australia NSW is a not-for-profit organisation which was founded in 1982. It was created in response to public concern about the lack of information, resources and appropriate residential care for people with dementia. Alzheimer's and Dementia Support Group - Hawkesbury Peppercorn Place, 320 George Street, Windsor NSW 2576 Phone: (02) 4587 0210 Fax: (02) 4587 0200 Email: Web: http://www.alznsw.asn.au/ Anyone in a family affected by Alzheimers or other dementias is most welcome at all meetings. Meetings are free and include Guest Speakers on various topics around Dementia Care and frank discussions of behaviours and how to cope with them. If you need help with in-home respite or transport please contact the Support group. It is not essential that you attend your most local group. If the meeting time of another group is more suitable then you will be most welcome to attend that one. Angelman Syndrome Association of Australia P.O. Box 554 Sutherland NSW 2232 Phone: (02) 9520 5857 Fax: Email: simonek@angelmansyndrome.org Web: http://www.angelmansyndrome.org/ Provides information about Angelman Syndrome for families carers and professionals. The ASA also offers support and family get togethers as well as biennial national conferences involving key professionals and the sharing of family experiences with Angelman Syndrome. Arthritis Foundation of NSW Locked bag 16 North Parramatta NSW 2151 Phone: (02) 9683 1622 Fax: (02) 9683 1633 Email: info@arthritisnsw.com.au Web: http://www.arthritisnsw.org.au/ The Arthritis Foundation of NSW is a non-government community health organization aiming to provide a community education programme to raise community awareness of the problems confronted by people with arthritis. It also seeks funds for research into the causes and cures of arthritis, as well as providing support, advice and information for those with arthritis and their families. Association Of Relatives & Friends Of The Mentally ill (ARAFMI) PO Box 6414 North Ryde NSW 2113 Phone: (02) 9887 5897 Freecall: 1800 655 198 Fax: (02) 9887 5766 Email: Web: http://www.arafmi.org/ Provides information and support for relatives and friends of people with a mental illness as well as those who are touched by mental illness. Asthma Foundation of NSW Suite 2 100 Pacific Hwy St Leonards NSW 2065 Phone: (02) 9906 3233 Fax: (02) 9906 4493 Email: ask@asthmansw.org.au Web: http://www.asthmansw.org.au/ The Asthma Foundation of NSW informs and educates the community, liaises with government and other bodies on asthma related issues and supports and informs people with asthma how best to achieve as full and healthy a lifestyle as possible while controlling their asthma. Australian Association of the Deaf - NSW Branch PO Box 4681 North Rocks NSW 2151 Phone: (02) 9871 8400 Fax: (02) 9871 8218 Email: Web: http://www.aad.org.au/ The Australian Association of the Deaf Inc. (AAD) is the national peak organisation for Deaf people in Australia. It represents the views of Deaf people who use Auslan (Australian Sign Language). Australian Communication Exchange - (ACE) 33 Argyle Street Parramatta NSW 2150 Phone: (02) 9895 2970 or 1800 555 630 TTY - (02) 9895 2971 or 1800 555 660 Fax - (02) 9895 2972 or 1800 555 690 Email: feedback@aceinfo.net.au Web: http://www.aceinfo.net.au/ Australian Communication Exchange (ACE) is dedicated to empowering those who are Deaf or have a hearing, speech or communication impairment, to obtain access to the telephone and other telecommunication networks. Australian Dyspraxia Support Group and Resource Centre Inc. "Can-Do Cottage", 82 Cox Street P.O. Box 5519 South Windsor NSW 2756 Phone: (02) 4577 6220 Fax: (02) 4511 6088 Email: information@dyspraxia.com.au Web: http://www.dyspraxia.com.au Membership fee: $30.00 per family $35.00 for professionals and $70 for organisations per annum. Provides support, education, information, advocacy and resources on dyspraxia and associated learning difficulties for families and professionals. The organisation also runs workshops and an annual conference. Dyspraxia is a neurologically based motor planning disorder. There is also information and support available through the national help-line. Australian Tinnitus Association (NSW) Ltd 2 Leichardt Street Darlinghurst NSW 2010 PO Box 660 Woollahra NSW 1350 Phone: (02) 8382 3331 or 8382 3338 Fax: (02) 8382 3333 Email: info@tinnitus.asn.au Web: http://www.tinnitus.asn.au Information, research and support regarding tinnitus a hearing impairment that can involve ringing, hissing or other distressing noises in the ear or head. Tinnitus affects approximately 20% of the population across all age groups. Autism and Aspergers Support Group P O Box 723 Richmond NSW 2753 Phone: 0425 380 575 Email; autismaspergers@hotmail.com Web: http://www.members.westnet.com.au/rowanth Meets 2nd Monday of each month 7.30pm at The Richmond Club, 6 East Market Street, Richmond. Support Group for parents of children with Autism/Aspergers. Library facilities are available at meetings. Autism Association of New South Wales - Western Sydney Centre 3 Prospect Shopping Village Cnr Blacktown Road and Aldgate Street Prospect NSW 2148 Phone: (02) 8868 8500 Fax: (02) 9896 5266 Email: infoline@autismnsw.com.au Web: http://www.autismnsw.com.au/contact/westernsyd.asp Operates an education and research base as well as a schools therapy team covering western Sydney. Information about autism, support and resources to assist families and carers. Blue Mountains Disabilities Forum lnc. 45 Honour Avenue Lawson NSW 2783 Phone: (02) 4759 1797 Email: Web: Meets Monthly, 1st Friday, 12-2pm at Katoomba Neighbourhood Centre Aims to encourage networking, advocacy, lobbying and resourcing for and with people with disabilities. Brain Injury Association of NSW Suite 6 17 Macquarie Road Auburn NSW 2144 Phone: (02) 9749 5366 Freecall: 1800 802 840 Fax: (02) 9749 5608 Email: mail@biansw.org.au Web: http:/www./biansw.org.au/main.asp The Brain Injury Association of NSW works to make the community, and the government, aware of the needs and issues affecting people who have an acquired brain injury. Our purpose is to represent and support people with an acquired brain injury so that they can participate equally in the community. Carers NSW, Inc. Level 17 323 Castlereagh Street Sydney NSW 2000 Phone: (02) 9280 4744 Freecall:1800 242 636 Fax: (02) 9280 4755 Email: contact@carernsw.asn.au Web: http://www.carernsw.asn.au/ Carers NSW is an association for relatives and friends who are caring for people with a disability, mental illness, chronic condition or who are frail aged. We are the Peak Body for carers in New South Wales and the only state-wide organisation that has carers as its primary focus. Coeliac Society of NSW P O Box 703 Chatswood NSW 2057 Phone: (02) 9411 4100 Fax: (02) 9413 1296 Email: info@nsw.coeliac.org.au Web: http://www.nswcoeliac.org.au/ The New South Wales Society provides information and support to those medically diagnosed with Coeliac Disease and their families and carers, sufferers of Dermatitis Herpetiformis and those medically diagnosed as requiring a gluten free diet. Continence Foundation of Australia in NSW Inc P O Box 2522 North Parramatta NSW 1750 Phone: (02) 9840 4165 Freecall: 1800 069 789 Fax: (02) 9840 4163 Email: contfoundnsw@ozemail.com Web: The Continence Foundation of Australia exists to serve the interests of incontinent people throughout Australia by improving access to and availability of services, providing information and advice and promoting education, support and research. Cystic Fibrosis NSW P O Box 149 North Ryde NSW 1670 Phone: (02) 9878 2075 Freecall: 1800 650 614 Fax: (02) 9878 4890 Email: general@cysticfibrosisnsw.org.au Web: http://www.cysticfibrosisnsw.org.au/ Cystic Fibrosis NSW provides support, group programs, advocacy and community education programs as well as information and education programs of this disease. D Sports 123 Henry Street (Cnr Station St), Penrith NSW 2750 Phone: (02) 4731 3694 Fax: (02) 4731 4527 Email: metrowest@nswscd.com.au Web: http://www.nswscd.com.au/ Contact: Ben Felten To foster the development of sporting and recreational opportunities for people with disabilities. Information service. Mainly sports, recreational and rehabilitation programs, sports camps. Represent other disability associations. Deaf Blind Association of NSW P.O. Box 1295 Strathfield NSW 2135 Phone: (02) 9456 2372 Fax: (02) 9334 3200 Email: dbansw@gpo.com.au Web: Support group for parents and people who are deaf-blind. Some services offered, eg respite and recreation outings. Defence Special Needs Support Group - Richmond 4 Hosier Place Bligh Park Phone: (02) 4572 6243 Mobile: 0427 008 084 Email: watson.carolyn@optusnet.com.au Web: http://www.dsnsg.org.au/ The Defence Special Needs Support Group is a self-help group for Defence families who have a child, spouse or elderly dependant with special needs that may include physical, sensory, or intellectual disabilities, learning difficulties, learning disabilities, autism, speech problems, gifted or talented, developmental delay, attention deficit disorder, epilepsy, chronic illness (i.e. asthma, diabetes). They offer: A national network of on-going peer support, a link between families with similar needs. Dementia Home Support 360 Windsor St, Richmond NSW 2753 Phone: (02) 4588 6719 Fax: (02) 4588 5007 Email: Web: Contacts: Blue Mountains/Penrith: Helen Bartley, Mobile:0411 826 490. Blacktown/Hawkesbury. Anne Bouboulas, Mobile: 0411 803 451 Dementia Home Support is a community-based service for people with dementia (and/or carers) which will assist them to remain in the community. Services include: respite, meal preparation, monitoring of diet and safety, exercise, memory activities and conversation. Home duties can also be provided in exceptional circumstances. The service also provides support and information to carers. Carers Support Groups run in Blacktown on the 2nd Wednesday of each month from 7:30pm-9..30pm and in Penrith on the 2nd Thursday of each month from 1 pm-3pm. Diabetes Australia NSW Inc GPO Box 9824 Sydney NSW 2001 Phone: (02) 9552 9900 Customer Care Line: 1300 136 588 Fax: (02) 9660 3633 Email: info@diabetesnsw.com.au Web: http://www.diabetesnsw.com.au/ Diabetes Australia NSW aims to serve the best interests of all people affected by diabetes, to identify the undiagnosed and to research, prevent and cure diabetes. Disabilities Information and Referral Service (PDRC) 114- 116 Henry St Penrith NSW 2750 Phone: (02) 4732 2363 Email: pdrc@pdrc.org.au Web: http://www.pdrc.org.au/info_ref.html The Disability Information and Referral Service is funded by DADHC (Dept of Ageing, Disability and Home Care) however we run mainly by volunteers who have physical disabilities. These people are provided with ongoing training and support and often have an in-depth understanding of the issues that other people could be experiencing. Disabilities Information Library (NADO) The Community Connection, 114-116 Henry St, Penrith NSW 2750 Phone: (02) 4731 3330 Fax: (02) 4721 1333 Email: jashcroft@nado.org.au Web: http://www.nado.org.au/disability_info_lib.htm FEE $1 per borrowing. Appointment necessary. A centre based and mobile service providing over 2000 books, videos and various publications for people with disabilities, their carers, disability workers, students and other interested persons. The mobile part of the Library visits support groups, schools, playgroups, pre-schools, neighbourhood centres, universities, and many other interested groups. Down Syndrome NSW P.O. Box 2536 North Parramatta NSW 1750 Phone: (02) 9683 4333 Fax: (02) 9683 4020 Email: admin@dsansw.org.au Web: http://www.dsansw.org.au Down Syndrome NSW aims to support and promote the interests of all people with Down syndrome, their families and carers in NSW. Emergency Relief Anglicare, 20 Westminster St, Rooty Hill NSW 2766 Phone: (02) 9832 2300 Fax: (02) 9832 1934 Email: rootyhill@anglicare.org.au Web: http://www.anglicare.org.au Contact: Phone at 1Oam the day before proposed appointment to book Food assistance, help with accounts when resources are available e.g. water, electricity, gas, etc. This service is available to residents of Hawkesbury, Blacktown and Penrith LGA's who are in financial crisis. Epilepsy Association of NSW Suite 8 "Oxford Place" 44-46 Oxford Street Epping NSW 2121 Phone: (02) 9856 7090 Tollfree: 1300 366 162 Fax: (02) 9869 4122 Email: lhyde@epilepsy.org.au Web: http://www.epilepsy.org.au/ The Epilepsy Association is a health charity helping individuals and the community to manage and adjust to those seizures. Fragile X Association of Australia 65 View St Annandale NSW 2038 Phone: (02) 9899 5232 Fax: (02) Email: fragilexassociation@optusnet.com.au Web: http://www.fragilex.org.au/ The association is a volunteer group of parents and friends of people affected with fragile X syndrome. The aims of the association are to help fragile X syndrome children and adults to realise their full potential, provide information and support to those people whose lives have been affected by fragile X, promote acceptance and integration of people with fragile X within the community and to raise public awareness of fragile X. Gilgai Aboriginal Centre 2 Bindaree Street Hebersham NSW 2770 Phone: (02) 9832 3825 Fax: (02) 9832 3826 Email: gilgai@pnc.com.au Web: Gilgai is a Community Care Service for the Aged, the Disabled and Carers within the Aboriginal Community. The services provided include Home and Community Care Development work. Glossodia Community Centre 162 Golden Valley Drive Glossodia NSW 2756 Phone: (02) 4576 5542 Fax: (02) 4576 6421 Email: Web: Glossodia Community Centre provides a full range of community services including: play groups, before, after-school and vacation care; aged day care group (Tuesdays - transport available); Lincs Volunteer Home Visiting Program for New Parents; information service; senior and junior youth groups. Also run some adult education (TAFE) courses. Grow - Richmond Community Health Centre March Street Richmond NSW 2753 Phone: (02) 4737 8773 - Stacey Email: Web: http://www.growint.org.au/ GROW meets each Monday at 7.30pm and is a support group for people recovering from mental health issues. Guide Dog Association of NSW and ACT Suite 3 149 Hawkesbury Rd Westmead NSW 2145 Phone: (02) 9891 4914 Fax: (02) 9891 4143 Email: info@guidedogs.com.au Web: http://www.guidedogs.com.au/ The Guide Dog Association of New South Wales and ACT provides a full range of mobility and orientation services to people with a vision impairment or low vision. All services are delivered free of charge. They provide: Assessment and training in Orientation and Mobility to persons with disabilities; Guide dogs as aids to mobility; Other aids including long canes, support canes and electronic aids; Low vision assessment and training; Compensatory training to persons who have suffered stroke or other brain trauma; Pets As Therapy (PAT) dogs to provide companionship to people with special needs. Advocacy and community education on the needs and rights of people with disabilities; Staff training for other service providers. Hawkesbury Community Kitchen 93 Macquarie St, Windsor NSW 2756 Phone: (02) 4577 5203 Email: Web: Hours: Soup Kitchen: Mon-Fri 6.00pm-8.00pm. Contact: Referrals accepted 9am-12pm on Mondays and Thursdays. Kerry Hutton. Christian based aid agency providing a food service (soup kitchen) Mon-Fri from 6pm to 8pm and overnight/crisis accommodation from 8pm-8am (for a maximum period of up to 2 weeks) for homeless men aged 16 years and over. Hawkesbury Neighbour Aid Peppercorn Place, 320 George St Windsor NSW 2756 Phone: (02) 4587 0222 Fax: (02) 4587 0200 Email: christine.sorensen@peppercornservices.asn.au Web: http://www.hawkesbury.nsw.gov.au/council/1112/1192.html Hawkesbury Neighbour Aid is a volunteer service that provides: practical assistance, social support, advocacy, respite (2hrs/wk), transport (in special circumstances), recreational activities and outings as well as short term recovery care. Contact Christine Sorensen, Coordinator, for more information including details on waiting lists. Hawkesbury Women's Housing Info Service (WHINS) Inc 20 West Market Street Richmond 2753 PO Box 483 Richmond NSW 2753 Phone: (02) 4578 3996 Fax: (02) 4578 3995 Email: hawkwhin@pnc.com.au Web: http://www.rcsi-neighbourhoodcentre.org/ Information, referral, support and advocacy for women in housing need. The service supports families in two medium term properties for a period of up to 12 months. These properties are for the use of women with children who have experienced domestic violence and spent some time in temporary accommodation. Hearing Impaired Support Group (PDRC) Suite G01 114- 116 Henry St Penrith NSW 2750 Phone: (02) 4732 2363 Email: pdrc@pdrc.org.au Web: http://www.pdrc.org.au Coordinated by Alison Herbert. Information, support, equipment available for use and resources for people with a hearing impairment. Huntington's Disease Association (NSW) 21 Chatham Road West Ryde NSW 2114 Phone: (02) 9874 9777 Freecall: 1800 244 735 Fax: (02) 9874 9177 Email: enquiries@ahdansw.asn.au Web: http://www.ahdansw.asn.au/welcome.html The Association provides support services to families living with Huntington's Disease (HD) in the Australian state of New South Wales and the Australian Capital Territory. Hyperactivity Attention Deficit Association, N.S.W 15/29 Bertram Street Chatswood NSW 2067 Phone: (02) 9411 2186 Fax: (02) Email: Web: http://www.users.bigpond.com/hyperadd/ The Hyperactivity Attention Deficit Association provides counselling, advice and support to ADD/ADHD children, adults and their families. It publicises the existence of ADD/ADHD and fosters understanding and recognition of the symptoms. Learning Links 12-14 Pindari Road Peakhurst NSW 2210 Phone: (02) 9534 1710 Fax: (02) 9584 2054 Email: mail@learninglinks.org.au Web: http://www.learninglinks.org.au/ Learning Links works with families to provide a complete service for children in need. Our service brings together teachers, psychologists, speech pathologists, occupational therapists and family counsellors to work towards each individual child's goals. Learning Links helps children to be the best they can be. ME/Chronic Fatigue Syndrome Society of NSW Suite 204 10 Help Street Chatswood NSW 2067 Phone: (02) 9904 8433 Fax: (02) 9904 8435 Email: mmesoc@zip.com.au Web: http://www.me-cfs.org.au/ ME/CFS seeks to raise awareness, raise funds for research, provide information and facilitate support groups for people affected by ME/CFS. Motor Neurone Disease Association of NSW Inc. Concord Hospital BLDG 64 Hospital Rd. Concord NSW 2138 Phone: (02) 9743 5872 Freecall: 1800 640 144 Fax: (02) 9743 0526 Email: info@mndnsw.asn.au Web: http://www.mndnsw.asn.au/ MND aims to provide and promote the best possible support for people living with motor neurone disease, their families and carers, to advance research, and to raise awareness. Multiple Sclerosis Society of NSW Suite 109 114- 116 Henry St Penrith NSW 2750 Phone: (02) 4732 3673 Toll Free: 1800 042 138 Fax (02) 9287 2987 E-mail: penrith@msnsw.org.au Web: http://www.msnsw.org.au/Version4_2002/docs/home.php3 The Multiple Sclerosis Society of NSW provides an Outreach service providing advocacy, counselling, community education, support, information and referral for people with multiple sclerosis and their families/carers. Other services include rehabilitation, assessment and treatment, including occupational therapy and physiotherapy, short and long term accommodation, attendant care and community nursing home support. Muscular Dystrophy Association of N.S.W. Locked Bag 1005 Rosebery NSW 1445 Phone: (02) 9697 9111 Fax: (02) 9697 9092 Email: mdansw@mdansw.org Web: http://www.mdansw.org/home.htm The Muscular Dystrophy Association of NSW provides support, equipment, advice and referral, and advocacy to those with neuromuscular disorders and their carers. Funding research into improved treatment methods and the search for a cure is also a central priority. Nepean Migrant Access Peppercorn Place, 320 George Street, Windsor NSW 2756 Phone: (02) 4587 0222 Fax: (02) 4587 0200 Email: Web: http://www.hawkesbury.nsw.gov.au/council/1112/1192.html Open on Mondays and Tuesdays. Information, advocacy and referral service for migrants, re-settlement. Arranges English classes and skill based courses through TAFE. Organises special programs according to need. Ngara Aboriginal Carer Support Service Suite 110, 114-116 Henry St, Penrith NSW 2750 Phone: (02) 4722 3489 Fax: (02) 4722 3492 Email: Web: Service Area: Deerubbin Local Land Council Area (approx 5 LGAS) Contact: Coordinator: Betty Connelly. Mobile:0410 467 353. Ngara is an information, referral, support and advocacy service for carers who are of Aboriginal or Torres Strait Islander descent and for people who care for koori elders or koori people with disabilities. NSW Council for Intellectual Disability Suite 3 Level 3 22-36 Mountain Street Broadway NSW 2007 Phone: (02) 9211 1611 Freecall: 1800 424 065 Fax (02) 9211 2606 E-mail: nswcid@nswcid.org.au Web: http://www.nswcid.org.au/index.htm NSW Council for Intellectual Disability is the peak body representing the rights and interests of people with an intellectual disability in NSW. Council's role includes systemic advocacy, lobbying and information provision. NSW Wheelchair Sports Association Inc 600 Victoria Rd Ryde NSW 2112 Phone: (02) 9809 5260 Fax: (02) 9809 5638 Email: nswwsa@nswwsa.org.au Web: http://www.nswwsa.org.au/ NSW Wheelchair Sports Association (NSWWSA) is the highest profile and largest single disability sporting group in Australia. Its members include many of disability sports' biggest names: Louise Sauvage (athletics), Troy Sachs (wheelchair basketball), David Hall (tennis) and John Maclean (endurance athlete). NSWWSA conducts a wide, diverse range of events and programs catering for the novice to the elite Paralympian. These activities take place throughout the year in locations across regional NSW. Osteogenesis Imperfecta of Australia (Brittle Bones) PO Box 401 Epping NSW 2121 Phone: (02) 9869 1486 Fax: (02) 9868 4991 Email: petlyn@hotkey.net.au Web: http://www.oiaustralia.org/ The aim of Osteogenesis Imperfecta of Australia is to care for and expand knowledge of the Brittle Boned individual with the objective of improving the quality of life. Paraplegic & Quadriplegic Association of NSW PO Box 6347 Silverwater DC NSW 1811 Phone: (02) 8741 5600 Fax: (02) 8741 5650 Email: paraquad@paraquad.nsw.asn.au Web: http://www.paraquad.nsw.asn.au ParaQuad provides people with a spinal cord injury or a similar disability, their families and carers services to assist them to live as independently as possible, equipment and aids, advocacy, broad expert information and advice and a medico-legal service. Parkinson's Syndrome Society of NSW Concord Repatriation & General Hospital BLDG 64 Hospital Road Concord NSW 2139 Phone: (02) 9767 7881 Fax: (02) 9767 7882 Email: Web: The Parkinson's Syndrome Society of NSW provides services for people with Parkinson's syndrome, their carers, doctors and paramedical professionals. Services include a free information package, a telephone information service, a library of books, videos and audio tapes, funding for research and educational assistance to various professionals who assist people with Parkinson's syndrome. Penrith Association for People with Disabilities - PATH Inc Suite 115 114- 116 Henry St Penrith NSW 2750 Phone: (02) 4721 0866 Fax: (02) 4721 0805 Email: path@pnc.com.au Web: PATH provides support and information, lobbies for disability causes and works with other community groups to help people with a disability. PATH has a special interest in families. Services include support groups (Positive Links and a group for parents/carers of those with Aspergers syndrome), equipment pool for disabled children (EPIC) and Integration Co-ordinator to obtain integrated recreation for disabled children. PATH to your Door is a volunteer-based home-visiting service for parents/carers who are suffering isolation as a result of caring for people with a disability. Penrith Disabilities Resource Centre 114- 116 Henry St Penrith NSW 2750 Phone: (02) 4732 2363 Email: pdrc@pdrc.org.au Web: http://www.pdrc.org.au Penrith Disabilities Resource Centre Inc. seeks to deliver an information, referral and advocacy service to people with disabilities, their carers, families and advocates, and to involve people with disabilities in the planning, development and delivery of the Resource Centre's services and activities. Most of PDRC's information is kept on an electronic database. There is also a range of pamphlets, magazines, and other disability specific literature available to the community. Physical Disability Action Forum Suite G01, 114- 116 Henry St Penrith NSW 2750 Phone: (02) 4732 2363 Fax: (02) 4722 8168 Email: pdrc@pdrc.org.au Web: http://www.pdrc.org.au/forum.html A standing subcommittee of PDRC for people with physical and/or sensory disabilities who are interested in working together to achieve community awareness of their needs and raise issues and concerns that affect them. Physical Disability Council of NSW 184 Glebe Point Road Glebe NSW 2037 Phone: (02) 9552 1606 TTY: (02) 8223 7579 Freecall: 1800 688 831 Fax: (02) 9552 4644 Email: pdcnsw@pdcnsw.org.au Web: http://www.pdcnsw.org.au The Physical Disability Council of New South Wales Inc (PDCN) provides a state-wide voice for people with a physical disability with the goal of securing equal rights for people with disability. We participate in networks to build better links between people with a physical disability, their families and organisations. Whenever there are discussions involving service providers, decision makers in government, the communities in which we live or in business, we believe there should be "nothing about us without us. Positive Links Support Group Suite 115 The Community Connection, 114-116 Henry St Penrith NSW 2750 Phone: (02) 4721 0866 Fax: (02) 4721 0805 Email: path@pnc.com.au Web: A social support group for people with disabilities, their families and carers that meets on the 3rd Tuesday of each month from 10:30am. Post Polio Network NSW Inc P O Box 888 Kensington NSW 1465 Phone: (02) 9747 4694 Fax: (02) Email: alices@hotkey.net.au Web: http://www.post-polionetwork.org.au/index2.html The Post Polio Network provides support through advice, information kits, regular newsletters, a web site and bulletins on polio. It also encourages research into the late effects of polio. Prader Willi Syndrome Association of NSW Aust Inc 235 North West Arm Rd Grays Point NSW 2232 Phone: (02) 9525 6238 Fax: (02) 9525 6238 Email: nsw@pws.org.au Web: http://www.pws.org.au/nsw/ Prader-Willi Syndrome Association of NSW helps NSW parents and professionals in the support of people with Prader-Willi Syndrome (PWS). Red Cross Telecross Hawkesbury Penrith and Blue Mountains Suite 1 72-74 Bathurst St Liverpool NSW 2170 Phone: 1800 352 220 Email: wdickinson@nsw.redcross.org.au Web: http://www.nsw.redcross.org.au/Pages/l4tele.html Free service providing daily checks by telephone on the security/well-being of frail aged, disabled or medically at risk clients who live alone. Rett Syndrome Association of NSW Inc 108 Coates Park Road Cobbitty NSW 2570 Phone: (02) 4651 2739 Fax: (02) 4651-1053 Email: jlillis@ispdr.net.au Web: http://www.rett.nesher.com.au/ Provides respite and support to the families with daughters suffering from Rett Syndrome. Raises money for medical research into the cause, treatment and possible cure. Promotes community education. Royal Blind Society P.O. Box 176 Burwood NSW 2134 Phone: (02) 9334 3333 Tollfree: 1300 134 560 Fax: (02) 9747 5993 Email: customerservice@rbs.org.au Web: http://www.rbs.org.au Royal Blind Society (RBS) is the key blindness agency in NSW and the ACT. Through specialist services, we work in partnership with people who are blind or vision impaired and their families, to expand the choices available to them. Royal lnstitute for Deaf and Blind Children 361-365 North Rocks Rd North Rocks NSW 2151 Phone: (02) 9871 1233 Fax: (02) 9871 2196 Email: info@ridbc.org.au Web: http://www.ridbc.org.au/ The Royal Institute for Deaf and Blind Children, Australia's premier provider of education services to children with hearing and/or vision impairment. Schizophrenia Fellowship of NSW Locked Bag 5014 Gladesville NSW 1675 Phone: (02) 9879 2600 Fax: (02) 9879 2699 Email: info@sfnsw.org.au Web: http://www.sfnsw.webcentral.com.au The Schizophrenia Fellowship of NSW Inc. is committed to improving the circumstances and welfare of people living with schizophrenia, their relatives and carers, and professionals working in the area. The Fellowship works to eliminate stigma and create a society that is understanding and accepting, ensure that people with schizophrenia, and their carers and relatives, have access to information and appropriate services and advocate on behalf of people with schizophrenia, their carers and relatives and mental health professionals, for better government policy in the areas of research, treatment, rehabilitation, housing and other relevant areas. Scleroderma Association of NSW PO Box 241 Chatswood NSW 2057 Phone: (02) 9411 3459 Fax: (02) 9411 3009 Email: Scleronsw@aol.com Web: http://www.sclerodermansw.org/ The Association's aim is to provide support and information to people with scleroderma, their carers, and interested professionals by offering seminars, workshops, newsletters, literature, telephone information, counselling and videos. All of the Association's work is carried out on a voluntary basis by members. Self Help For Hard of Hearing People (SHHH) Hillview Community Health Centre 1334 Pacific Highway Turramurra NSW 2074 Phone: (02) 9144 7586 Fax: (02) 9144 3936 Email: shhh@netspace.net.au Web: http://www.shhhaust.org/index.htm SHHH Australia Inc. is a voluntary, non-profit educational organisation dedicated to helping Australians with a hearing loss and whose primary method of communication is through speech. We give information and advice to hearing impaired people and their families, while promoting community understanding about hearing loss. Special Needs Service - Hawkesbury City Council Library Windsor Central Library Dight Street Windsor NSW 2756 Phone: (02) 4560 4467 Fax: (02) Email: library@hawkesbury.nsw.gov.au Web: http://www.hawkesbury.nsw.gov.au The Special Needs Service is a complete library service provided free to individual residents who are infirm, have a disability or prolonged illness in the Hawkesbury Local Government Area. The Special Needs Collections includes large print and talking book, magazines on tape and cassette players for loan. There is also an equipment provision service that includes magnifying glasses, page turners and book stands. All of these are available for loan. Contact the Special Needs Officer and Windsor Library. Spina Bifida Group 1 Fennell Street North Parramatta NSW 2151 Phone: (02) 9890 0990 Fax: (02) 9683 2827 Email: sbgroup@northcott.com.au Web: http://www.northcott.com.au/WebPages/webPage.cfm?PID=323 The Spina Bifida Group of NSW was formed by a group of parents who were having difficulty finding support and information about Spina Bifida. In 1985, at the request of the Group, The Northcott Society assumed responsibility for the provision of services to members. The Spina Bifida Group of NSW, which has over 350 members, operates as a division of The Northcott Society. Spinal Cord Injury Australia P.O. Box 397 Matraville NSW 2036 Phone: (02) 9661 8855 or 1800 819 775 Fax: (02) 9661 9598 Email: office@spinalcordinjuries.com.au Web: http://www.spinalcordinjuries.com.au Spinal Cord Injuries Australia provides consumer based support and rehabilitation services to people with physical disabilities that were begun by the Australian Quadriplegic Association. Spinal Cord is a leading provider of innovative and holistic care programs and facilities designed to support the efforts of people with spinal cord injuries and similar conditions to build fulfilling lives. SCI Australia also works in partnership with communities to promote awareness of spinal cord injuries and similar conditions and to create living and workplace environments capable of embracing, encouraging and supporting such people. The Cleft Palate and Lip Society (Cleftpals) PO Box 475 Lane Cove NSW 1595 Phone: (02) 9294 8944 Fax: Email: rcurry@owfive.com Web: http://www.cleftpals.org.au/ Cleftpals exists to help support people who are involved with cleft lips and/or palates. The Deaf Society of NSW PO Box 1060 Parramatta NSW 2124 Phone: (02) 9893 8555 or 1800 893 855 TTY: (02) 9893 8858 or 1800 893 885 Fax: (02) 9893 8333 Email: deafsoc@ihug.com.au Web: http://www.deafsocietynsw.org.au/ The Deaf Society of NSW works within the community to ensure Deaf people achieve their full rights and fulfil their responsibilities as Australian citizens. The Deaf Society believes that Deaf people should enjoy the same political, civil and human rights as other members of the community and works with the Deaf Community to secure these rights. The Northcott Society P.O. Box 4055 North Parramatta NSW 2151 Phone: (02) 9890 0100 Freecall: 1800 506 071 Fax: (02) 9683 2827 Email: enquiry@northcott.com.au Web: http://www.northcott.com.au/ Today, The Northcott Society provides support and services to over 3,500 individuals and families across NSW. Our aim is to help people with disabilities develop skills, maximise their potential for independence and to participate as full members of the community. Northcott supports people with a wide range of disabilities including spina bifida, cerebral palsy, neuro-muscular disorders, limb deficiency, and other lesser-known conditions. Northcott often provides services for people with rare conditions who are not provided for by other organisations. The Spastic Centre of NSW 252 High St Penrith NSW 2750 Phone: (02) 4732 2700 Email: Web: http://www.tscnsw.org.au/ The Spastic Centre's Children's Services provide support to children aged 0-18 years in New South Wales and the ACT who have cerebral palsy or a similar disability and their families. The Wheelchair & Disabled Assn Of Aust (also known as House with No Steps) 49 Blackbutts Rd Belrose NSW 2085 Phone: (02) 9451 1511 Fax: (02) 9452 1882 Email: headoffice@hwns.com.au Web: http://www.hwns.com.au/index2.htm House With No Steps is a project of The Wheelchair and Disabled Association of Australia, to provide quality support services for people with disabilities. We currently employ over 450 supported employees, and provide services to more than 1400 people with disabilities. Tourette Syndrome Association of Australia Inc. PO Box 1173 Maroubra NSW 2035 Phone: (02) 9382 3726 Fax (02) 9382 3764 Emails: info@tourette.org.au Web: http://www.tourette.org.au/index.php The Tourette Syndrome Association disseminates educational materials in the fields of health care, education and welfare service, provides telephone counselling and operates support groups. We support parent advocacy and other services to help families cope with problems that may occur with TS. Visual Impaired Support Group (PDRC) 114- 116 Henry St Penrith NSW 2750 Phone: (02) 4732 2363 Email: Web: Information, support, encouragement, friendship, social outings, resources and guest speakers for people with a visual impairment. Meetings are held monthly in the Community Connections building, opposite TAFE. Well Wise Women's Café Windsor Library Cnr George & Dight Streets Windsor NSW 2756 Email: Web: Contact: Amanda Higgins 4560 5714 or Gail De Lucia 4578 1622 Well Wise Women's Cafe (WWW Cafe) operates every Thursday from 10.30am to 12.30pm. Provides information on services available for women in the Hawkesbury Area including health, aged services and help as well as information about generic and specific services related to families. Western Sydney Community Forum 62 Railway Parade Granville NSW 2142 Phone: (02) 9897 2677 Fax: (02) 9897 2655 Email: wscf@wscf.org.au Web: Provides information, support and training to community based organisations funded under the aged or disability services programs within the Western Sydney area. Acquired Brain Injury Group
(Seekers)
Shop 10 Orange Grove Mall, Windsor Street, Richmond NSW 2753 Phone: (02) 4588 6222 Fax: (02) 4588 6322 Email: seekers@pnc.com.au Web: Office Hrs: Tues, Thur & Fri 8.30am to 3.30pm Leisure and recreation service for adults with an acquired brain injury. Provides out of hours respite care for adults with an acquired brain injury. Activities may include dining out, ten pin bowling, barbeques and picnics. Telephone support is also provided. Alzheimers Association of NSW P O Box 6042 North Ryde NSW 1670 Phone: (02) 9805 0100 Fax: (02) 9805 1665 Email: admin@alznsw.asn.au Web: http://www.alzheimers.org.au/ Alzheimer's Australia NSW is a not-for-profit organisation which was founded in 1982. It was created in response to public concern about the lack of information, resources and appropriate residential care for people with dementia. Alzheimer's and Dementia Support Group - Hawkesbury Peppercorn Place, 320 George Street, Windsor NSW 2576 Phone: (02) 4587 0210 Fax: (02) 4587 0200 Email: Web: http://www.alznsw.asn.au/ Anyone in a family affected by Alzheimers or other dementias is most welcome at all meetings. Meetings are free and include Guest Speakers on various topics around Dementia Care and frank discussions of behaviours and how to cope with them. If you need help with in-home respite or transport please contact the Support group. It is not essential that you attend your most local group. If the meeting time of another group is more suitable then you will be most welcome to attend that one. Angelman Syndrome Association of Australia P.O. Box 554 Sutherland NSW 2232 Phone: (02) 9520 5857 Fax: Email: simonek@angelmansyndrome.org Web: http://www.angelmansyndrome.org/ Provides information about Angelman Syndrome for families carers and professionals. The ASA also offers support and family get togethers as well as biennial national conferences involving key professionals and the sharing of family experiences with Angelman Syndrome. Arthritis Foundation of NSW Locked bag 16 North Parramatta NSW 2151 Phone: (02) 9683 1622 Fax: (02) 9683 1633 Email: info@arthritisnsw.com.au Web: http://www.arthritisnsw.org.au/ The Arthritis Foundation of NSW is a non-government community health organization aiming to provide a community education programme to raise community awareness of the problems confronted by people with arthritis. It also seeks funds for research into the causes and cures of arthritis, as well as providing support, advice and information for those with arthritis and their families. Association Of Relatives & Friends Of The Mentally ill (ARAFMI) PO Box 6414 North Ryde NSW 2113 Phone: (02) 9887 5897 Freecall: 1800 655 198 Fax: (02) 9887 5766 Email: Web: http://www.arafmi.org/ Provides information and support for relatives and friends of people with a mental illness as well as those who are touched by mental illness. Asthma Foundation of NSW Suite 2 100 Pacific Hwy St Leonards NSW 2065 Phone: (02) 9906 3233 Fax: (02) 9906 4493 Email: ask@asthmansw.org.au Web: http://www.asthmansw.org.au/ The Asthma Foundation of NSW informs and educates the community, liaises with government and other bodies on asthma related issues and supports and informs people with asthma how best to achieve as full and healthy a lifestyle as possible while controlling their asthma. Australian Association of the Deaf - NSW Branch PO Box 4681 North Rocks NSW 2151 Phone: (02) 9871 8400 Fax: (02) 9871 8218 Email: Web: http://www.aad.org.au/ The Australian Association of the Deaf Inc. (AAD) is the national peak organisation for Deaf people in Australia. It represents the views of Deaf people who use Auslan (Australian Sign Language). Australian Communication Exchange - (ACE) 33 Argyle Street Parramatta NSW 2150 Phone: (02) 9895 2970 or 1800 555 630 TTY - (02) 9895 2971 or 1800 555 660 Fax - (02) 9895 2972 or 1800 555 690 Email: feedback@aceinfo.net.au Web: http://www.aceinfo.net.au/ Australian Communication Exchange (ACE) is dedicated to empowering those who are Deaf or have a hearing, speech or communication impairment, to obtain access to the telephone and other telecommunication networks. Australian Dyspraxia Support Group and Resource Centre Inc. "Can-Do Cottage", 82 Cox Street P.O. Box 5519 South Windsor NSW 2756 Phone: (02) 4577 6220 Fax: (02) 4511 6088 Email: information@dyspraxia.com.au Web: http://www.dyspraxia.com.au Membership fee: $30.00 per family $35.00 for professionals and $70 for organisations per annum. Provides support, education, information, advocacy and resources on dyspraxia and associated learning difficulties for families and professionals. The organisation also runs workshops and an annual conference. Dyspraxia is a neurologically based motor planning disorder. There is also information and support available through the national help-line. Australian Tinnitus Association (NSW) Ltd 2 Leichardt Street Darlinghurst NSW 2010 PO Box 660 Woollahra NSW 1350 Phone: (02) 8382 3331 or 8382 3338 Fax: (02) 8382 3333 Email: info@tinnitus.asn.au Web: http://www.tinnitus.asn.au Information, research and support regarding tinnitus a hearing impairment that can involve ringing, hissing or other distressing noises in the ear or head. Tinnitus affects approximately 20% of the population across all age groups. Autism and Aspergers Support Group P O Box 723 Richmond NSW 2753 Phone: 0425 380 575 Email; autismaspergers@hotmail.com Web: http://www.members.westnet.com.au/rowanth Meets 2nd Monday of each month 7.30pm at The Richmond Club, 6 East Market Street, Richmond. Support Group for parents of children with Autism/Aspergers. Library facilities are available at meetings. Autism Association of New South Wales - Western Sydney Centre 3 Prospect Shopping Village Cnr Blacktown Road and Aldgate Street Prospect NSW 2148 Phone: (02) 8868 8500 Fax: (02) 9896 5266 Email: infoline@autismnsw.com.au Web: http://www.autismnsw.com.au/contact/westernsyd.asp Operates an education and research base as well as a schools therapy team covering western Sydney. Information about autism, support and resources to assist families and carers. Blue Mountains Disabilities Forum lnc. 45 Honour Avenue Lawson NSW 2783 Phone: (02) 4759 1797 Email: Web: Meets Monthly, 1st Friday, 12-2pm at Katoomba Neighbourhood Centre Aims to encourage networking, advocacy, lobbying and resourcing for and with people with disabilities. Brain Injury Association of NSW Suite 6 17 Macquarie Road Auburn NSW 2144 Phone: (02) 9749 5366 Freecall: 1800 802 840 Fax: (02) 9749 5608 Email: mail@biansw.org.au Web: http:/www./biansw.org.au/main.asp The Brain Injury Association of NSW works to make the community, and the government, aware of the needs and issues affecting people who have an acquired brain injury. Our purpose is to represent and support people with an acquired brain injury so that they can participate equally in the community. Carers NSW, Inc. Level 17 323 Castlereagh Street Sydney NSW 2000 Phone: (02) 9280 4744 Freecall:1800 242 636 Fax: (02) 9280 4755 Email: contact@carernsw.asn.au Web: http://www.carernsw.asn.au/ Carers NSW is an association for relatives and friends who are caring for people with a disability, mental illness, chronic condition or who are frail aged. We are the Peak Body for carers in New South Wales and the only state-wide organisation that has carers as its primary focus. Coeliac Society of NSW P O Box 703 Chatswood NSW 2057 Phone: (02) 9411 4100 Fax: (02) 9413 1296 Email: info@nsw.coeliac.org.au Web: http://www.nswcoeliac.org.au/ The New South Wales Society provides information and support to those medically diagnosed with Coeliac Disease and their families and carers, sufferers of Dermatitis Herpetiformis and those medically diagnosed as requiring a gluten free diet. Continence Foundation of Australia in NSW Inc P O Box 2522 North Parramatta NSW 1750 Phone: (02) 9840 4165 Freecall: 1800 069 789 Fax: (02) 9840 4163 Email: contfoundnsw@ozemail.com Web: The Continence Foundation of Australia exists to serve the interests of incontinent people throughout Australia by improving access to and availability of services, providing information and advice and promoting education, support and research. Cystic Fibrosis NSW P O Box 149 North Ryde NSW 1670 Phone: (02) 9878 2075 Freecall: 1800 650 614 Fax: (02) 9878 4890 Email: general@cysticfibrosisnsw.org.au Web: http://www.cysticfibrosisnsw.org.au/ Cystic Fibrosis NSW provides support, group programs, advocacy and community education programs as well as information and education programs of this disease. D Sports 123 Henry Street (Cnr Station St), Penrith NSW 2750 Phone: (02) 4731 3694 Fax: (02) 4731 4527 Email: metrowest@nswscd.com.au Web: http://www.nswscd.com.au/ Contact: Ben Felten To foster the development of sporting and recreational opportunities for people with disabilities. Information service. Mainly sports, recreational and rehabilitation programs, sports camps. Represent other disability associations. Deaf Blind Association of NSW P.O. Box 1295 Strathfield NSW 2135 Phone: (02) 9456 2372 Fax: (02) 9334 3200 Email: dbansw@gpo.com.au Web: Support group for parents and people who are deaf-blind. Some services offered, eg respite and recreation outings. Defence Special Needs Support Group - Richmond 4 Hosier Place Bligh Park Phone: (02) 4572 6243 Mobile: 0427 008 084 Email: watson.carolyn@optusnet.com.au Web: http://www.dsnsg.org.au/ The Defence Special Needs Support Group is a self-help group for Defence families who have a child, spouse or elderly dependant with special needs that may include physical, sensory, or intellectual disabilities, learning difficulties, learning disabilities, autism, speech problems, gifted or talented, developmental delay, attention deficit disorder, epilepsy, chronic illness (i.e. asthma, diabetes). They offer: A national network of on-going peer support, a link between families with similar needs. Dementia Home Support 360 Windsor St, Richmond NSW 2753 Phone: (02) 4588 6719 Fax: (02) 4588 5007 Email: Web: Contacts: Blue Mountains/Penrith: Helen Bartley, Mobile:0411 826 490. Blacktown/Hawkesbury. Anne Bouboulas, Mobile: 0411 803 451 Dementia Home Support is a community-based service for people with dementia (and/or carers) which will assist them to remain in the community. Services include: respite, meal preparation, monitoring of diet and safety, exercise, memory activities and conversation. Home duties can also be provided in exceptional circumstances. The service also provides support and information to carers. Carers Support Groups run in Blacktown on the 2nd Wednesday of each month from 7:30pm-9..30pm and in Penrith on the 2nd Thursday of each month from 1 pm-3pm. Diabetes Australia NSW Inc GPO Box 9824 Sydney NSW 2001 Phone: (02) 9552 9900 Customer Care Line: 1300 136 588 Fax: (02) 9660 3633 Email: info@diabetesnsw.com.au Web: http://www.diabetesnsw.com.au/ Diabetes Australia NSW aims to serve the best interests of all people affected by diabetes, to identify the undiagnosed and to research, prevent and cure diabetes. Disabilities Information and Referral Service (PDRC) 114- 116 Henry St Penrith NSW 2750 Phone: (02) 4732 2363 Email: pdrc@pdrc.org.au Web: http://www.pdrc.org.au/info_ref.html The Disability Information and Referral Service is funded by DADHC (Dept of Ageing, Disability and Home Care) however we run mainly by volunteers who have physical disabilities. These people are provided with ongoing training and support and often have an in-depth understanding of the issues that other people could be experiencing. Disabilities Information Library (NADO) The Community Connection, 114-116 Henry St, Penrith NSW 2750 Phone: (02) 4731 3330 Fax: (02) 4721 1333 Email: jashcroft@nado.org.au Web: http://www.nado.org.au/disability_info_lib.htm FEE $1 per borrowing. Appointment necessary. A centre based and mobile service providing over 2000 books, videos and various publications for people with disabilities, their carers, disability workers, students and other interested persons. The mobile part of the Library visits support groups, schools, playgroups, pre-schools, neighbourhood centres, universities, and many other interested groups. Down Syndrome NSW P.O. Box 2536 North Parramatta NSW 1750 Phone: (02) 9683 4333 Fax: (02) 9683 4020 Email: admin@dsansw.org.au Web: http://www.dsansw.org.au Down Syndrome NSW aims to support and promote the interests of all people with Down syndrome, their families and carers in NSW. Emergency Relief Anglicare, 20 Westminster St, Rooty Hill NSW 2766 Phone: (02) 9832 2300 Fax: (02) 9832 1934 Email: rootyhill@anglicare.org.au Web: http://www.anglicare.org.au Contact: Phone at 1Oam the day before proposed appointment to book Food assistance, help with accounts when resources are available e.g. water, electricity, gas, etc. This service is available to residents of Hawkesbury, Blacktown and Penrith LGA's who are in financial crisis. Epilepsy Association of NSW Suite 8 "Oxford Place" 44-46 Oxford Street Epping NSW 2121 Phone: (02) 9856 7090 Tollfree: 1300 366 162 Fax: (02) 9869 4122 Email: lhyde@epilepsy.org.au Web: http://www.epilepsy.org.au/ The Epilepsy Association is a health charity helping individuals and the community to manage and adjust to those seizures. Fragile X Association of Australia 65 View St Annandale NSW 2038 Phone: (02) 9899 5232 Fax: (02) Email: fragilexassociation@optusnet.com.au Web: http://www.fragilex.org.au/ The association is a volunteer group of parents and friends of people affected with fragile X syndrome. The aims of the association are to help fragile X syndrome children and adults to realise their full potential, provide information and support to those people whose lives have been affected by fragile X, promote acceptance and integration of people with fragile X within the community and to raise public awareness of fragile X. Gilgai Aboriginal Centre 2 Bindaree Street Hebersham NSW 2770 Phone: (02) 9832 3825 Fax: (02) 9832 3826 Email: gilgai@pnc.com.au Web: Gilgai is a Community Care Service for the Aged, the Disabled and Carers within the Aboriginal Community. The services provided include Home and Community Care Development work. Glossodia Community Centre 162 Golden Valley Drive Glossodia NSW 2756 Phone: (02) 4576 5542 Fax: (02) 4576 6421 Email: Web: Glossodia Community Centre provides a full range of community services including: play groups, before, after-school and vacation care; aged day care group (Tuesdays - transport available); Lincs Volunteer Home Visiting Program for New Parents; information service; senior and junior youth groups. Also run some adult education (TAFE) courses. Grow - Richmond Community Health Centre March Street Richmond NSW 2753 Phone: (02) 4737 8773 - Stacey Email: Web: http://www.growint.org.au/ GROW meets each Monday at 7.30pm and is a support group for people recovering from mental health issues. Guide Dog Association of NSW and ACT Suite 3 149 Hawkesbury Rd Westmead NSW 2145 Phone: (02) 9891 4914 Fax: (02) 9891 4143 Email: info@guidedogs.com.au Web: http://www.guidedogs.com.au/ The Guide Dog Association of New South Wales and ACT provides a full range of mobility and orientation services to people with a vision impairment or low vision. All services are delivered free of charge. They provide: Assessment and training in Orientation and Mobility to persons with disabilities; Guide dogs as aids to mobility; Other aids including long canes, support canes and electronic aids; Low vision assessment and training; Compensatory training to persons who have suffered stroke or other brain trauma; Pets As Therapy (PAT) dogs to provide companionship to people with special needs. Advocacy and community education on the needs and rights of people with disabilities; Staff training for other service providers. Hawkesbury Community Kitchen 93 Macquarie St, Windsor NSW 2756 Phone: (02) 4577 5203 Email: Web: Hours: Soup Kitchen: Mon-Fri 6.00pm-8.00pm. Contact: Referrals accepted 9am-12pm on Mondays and Thursdays. Kerry Hutton. Christian based aid agency providing a food service (soup kitchen) Mon-Fri from 6pm to 8pm and overnight/crisis accommodation from 8pm-8am (for a maximum period of up to 2 weeks) for homeless men aged 16 years and over. Hawkesbury Neighbour Aid Peppercorn Place, 320 George St Windsor NSW 2756 Phone: (02) 4587 0222 Fax: (02) 4587 0200 Email: christine.sorensen@peppercornservices.asn.au Web: http://www.hawkesbury.nsw.gov.au/council/1112/1192.html Hawkesbury Neighbour Aid is a volunteer service that provides: practical assistance, social support, advocacy, respite (2hrs/wk), transport (in special circumstances), recreational activities and outings as well as short term recovery care. Contact Christine Sorensen, Coordinator, for more information including details on waiting lists. Hawkesbury Women's Housing Info Service (WHINS) Inc 20 West Market Street Richmond 2753 PO Box 483 Richmond NSW 2753 Phone: (02) 4578 3996 Fax: (02) 4578 3995 Email: hawkwhin@pnc.com.au Web: http://www.rcsi-neighbourhoodcentre.org/ Information, referral, support and advocacy for women in housing need. The service supports families in two medium term properties for a period of up to 12 months. These properties are for the use of women with children who have experienced domestic violence and spent some time in temporary accommodation. Hearing Impaired Support Group (PDRC) Suite G01 114- 116 Henry St Penrith NSW 2750 Phone: (02) 4732 2363 Email: pdrc@pdrc.org.au Web: http://www.pdrc.org.au Coordinated by Alison Herbert. Information, support, equipment available for use and resources for people with a hearing impairment. Huntington's Disease Association (NSW) 21 Chatham Road West Ryde NSW 2114 Phone: (02) 9874 9777 Freecall: 1800 244 735 Fax: (02) 9874 9177 Email: enquiries@ahdansw.asn.au Web: http://www.ahdansw.asn.au/welcome.html The Association provides support services to families living with Huntington's Disease (HD) in the Australian state of New South Wales and the Australian Capital Territory. Hyperactivity Attention Deficit Association, N.S.W 15/29 Bertram Street Chatswood NSW 2067 Phone: (02) 9411 2186 Fax: (02) Email: Web: http://www.users.bigpond.com/hyperadd/ The Hyperactivity Attention Deficit Association provides counselling, advice and support to ADD/ADHD children, adults and their families. It publicises the existence of ADD/ADHD and fosters understanding and recognition of the symptoms. Learning Links 12-14 Pindari Road Peakhurst NSW 2210 Phone: (02) 9534 1710 Fax: (02) 9584 2054 Email: mail@learninglinks.org.au Web: http://www.learninglinks.org.au/ Learning Links works with families to provide a complete service for children in need. Our service brings together teachers, psychologists, speech pathologists, occupational therapists and family counsellors to work towards each individual child's goals. Learning Links helps children to be the best they can be. ME/Chronic Fatigue Syndrome Society of NSW Suite 204 10 Help Street Chatswood NSW 2067 Phone: (02) 9904 8433 Fax: (02) 9904 8435 Email: mmesoc@zip.com.au Web: http://www.me-cfs.org.au/ ME/CFS seeks to raise awareness, raise funds for research, provide information and facilitate support groups for people affected by ME/CFS. Motor Neurone Disease Association of NSW Inc. Concord Hospital BLDG 64 Hospital Rd. Concord NSW 2138 Phone: (02) 9743 5872 Freecall: 1800 640 144 Fax: (02) 9743 0526 Email: info@mndnsw.asn.au Web: http://www.mndnsw.asn.au/ MND aims to provide and promote the best possible support for people living with motor neurone disease, their families and carers, to advance research, and to raise awareness. Multiple Sclerosis Society of NSW Suite 109 114- 116 Henry St Penrith NSW 2750 Phone: (02) 4732 3673 Toll Free: 1800 042 138 Fax (02) 9287 2987 E-mail: penrith@msnsw.org.au Web: http://www.msnsw.org.au/Version4_2002/docs/home.php3 The Multiple Sclerosis Society of NSW provides an Outreach service providing advocacy, counselling, community education, support, information and referral for people with multiple sclerosis and their families/carers. Other services include rehabilitation, assessment and treatment, including occupational therapy and physiotherapy, short and long term accommodation, attendant care and community nursing home support. Muscular Dystrophy Association of N.S.W. Locked Bag 1005 Rosebery NSW 1445 Phone: (02) 9697 9111 Fax: (02) 9697 9092 Email: mdansw@mdansw.org Web: http://www.mdansw.org/home.htm The Muscular Dystrophy Association of NSW provides support, equipment, advice and referral, and advocacy to those with neuromuscular disorders and their carers. Funding research into improved treatment methods and the search for a cure is also a central priority. Nepean Migrant Access Peppercorn Place, 320 George Street, Windsor NSW 2756 Phone: (02) 4587 0222 Fax: (02) 4587 0200 Email: Web: http://www.hawkesbury.nsw.gov.au/council/1112/1192.html Open on Mondays and Tuesdays. Information, advocacy and referral service for migrants, re-settlement. Arranges English classes and skill based courses through TAFE. Organises special programs according to need. Ngara Aboriginal Carer Support Service Suite 110, 114-116 Henry St, Penrith NSW 2750 Phone: (02) 4722 3489 Fax: (02) 4722 3492 Email: Web: Service Area: Deerubbin Local Land Council Area (approx 5 LGAS) Contact: Coordinator: Betty Connelly. Mobile:0410 467 353. Ngara is an information, referral, support and advocacy service for carers who are of Aboriginal or Torres Strait Islander descent and for people who care for koori elders or koori people with disabilities. NSW Council for Intellectual Disability Suite 3 Level 3 22-36 Mountain Street Broadway NSW 2007 Phone: (02) 9211 1611 Freecall: 1800 424 065 Fax (02) 9211 2606 E-mail: nswcid@nswcid.org.au Web: http://www.nswcid.org.au/index.htm NSW Council for Intellectual Disability is the peak body representing the rights and interests of people with an intellectual disability in NSW. Council's role includes systemic advocacy, lobbying and information provision. NSW Wheelchair Sports Association Inc 600 Victoria Rd Ryde NSW 2112 Phone: (02) 9809 5260 Fax: (02) 9809 5638 Email: nswwsa@nswwsa.org.au Web: http://www.nswwsa.org.au/ NSW Wheelchair Sports Association (NSWWSA) is the highest profile and largest single disability sporting group in Australia. Its members include many of disability sports' biggest names: Louise Sauvage (athletics), Troy Sachs (wheelchair basketball), David Hall (tennis) and John Maclean (endurance athlete). NSWWSA conducts a wide, diverse range of events and programs catering for the novice to the elite Paralympian. These activities take place throughout the year in locations across regional NSW. Osteogenesis Imperfecta of Australia (Brittle Bones) PO Box 401 Epping NSW 2121 Phone: (02) 9869 1486 Fax: (02) 9868 4991 Email: petlyn@hotkey.net.au Web: http://www.oiaustralia.org/ The aim of Osteogenesis Imperfecta of Australia is to care for and expand knowledge of the Brittle Boned individual with the objective of improving the quality of life. Paraplegic & Quadriplegic Association of NSW PO Box 6347 Silverwater DC NSW 1811 Phone: (02) 8741 5600 Fax: (02) 8741 5650 Email: paraquad@paraquad.nsw.asn.au Web: http://www.paraquad.nsw.asn.au ParaQuad provides people with a spinal cord injury or a similar disability, their families and carers services to assist them to live as independently as possible, equipment and aids, advocacy, broad expert information and advice and a medico-legal service. Parkinson's Syndrome Society of NSW Concord Repatriation & General Hospital BLDG 64 Hospital Road Concord NSW 2139 Phone: (02) 9767 7881 Fax: (02) 9767 7882 Email: Web: The Parkinson's Syndrome Society of NSW provides services for people with Parkinson's syndrome, their carers, doctors and paramedical professionals. Services include a free information package, a telephone information service, a library of books, videos and audio tapes, funding for research and educational assistance to various professionals who assist people with Parkinson's syndrome. Penrith Association for People with Disabilities - PATH Inc Suite 115 114- 116 Henry St Penrith NSW 2750 Phone: (02) 4721 0866 Fax: (02) 4721 0805 Email: path@pnc.com.au Web: PATH provides support and information, lobbies for disability causes and works with other community groups to help people with a disability. PATH has a special interest in families. Services include support groups (Positive Links and a group for parents/carers of those with Aspergers syndrome), equipment pool for disabled children (EPIC) and Integration Co-ordinator to obtain integrated recreation for disabled children. PATH to your Door is a volunteer-based home-visiting service for parents/carers who are suffering isolation as a result of caring for people with a disability. Penrith Disabilities Resource Centre 114- 116 Henry St Penrith NSW 2750 Phone: (02) 4732 2363 Email: pdrc@pdrc.org.au Web: http://www.pdrc.org.au Penrith Disabilities Resource Centre Inc. seeks to deliver an information, referral and advocacy service to people with disabilities, their carers, families and advocates, and to involve people with disabilities in the planning, development and delivery of the Resource Centre's services and activities. Most of PDRC's information is kept on an electronic database. There is also a range of pamphlets, magazines, and other disability specific literature available to the community. Physical Disability Action Forum Suite G01, 114- 116 Henry St Penrith NSW 2750 Phone: (02) 4732 2363 Fax: (02) 4722 8168 Email: pdrc@pdrc.org.au Web: http://www.pdrc.org.au/forum.html A standing subcommittee of PDRC for people with physical and/or sensory disabilities who are interested in working together to achieve community awareness of their needs and raise issues and concerns that affect them. Physical Disability Council of NSW 184 Glebe Point Road Glebe NSW 2037 Phone: (02) 9552 1606 TTY: (02) 8223 7579 Freecall: 1800 688 831 Fax: (02) 9552 4644 Email: pdcnsw@pdcnsw.org.au Web: http://www.pdcnsw.org.au The Physical Disability Council of New South Wales Inc (PDCN) provides a state-wide voice for people with a physical disability with the goal of securing equal rights for people with disability. We participate in networks to build better links between people with a physical disability, their families and organisations. Whenever there are discussions involving service providers, decision makers in government, the communities in which we live or in business, we believe there should be "nothing about us without us. Positive Links Support Group Suite 115 The Community Connection, 114-116 Henry St Penrith NSW 2750 Phone: (02) 4721 0866 Fax: (02) 4721 0805 Email: path@pnc.com.au Web: A social support group for people with disabilities, their families and carers that meets on the 3rd Tuesday of each month from 10:30am. Post Polio Network NSW Inc P O Box 888 Kensington NSW 1465 Phone: (02) 9747 4694 Fax: (02) Email: alices@hotkey.net.au Web: http://www.post-polionetwork.org.au/index2.html The Post Polio Network provides support through advice, information kits, regular newsletters, a web site and bulletins on polio. It also encourages research into the late effects of polio. Prader Willi Syndrome Association of NSW Aust Inc 235 North West Arm Rd Grays Point NSW 2232 Phone: (02) 9525 6238 Fax: (02) 9525 6238 Email: nsw@pws.org.au Web: http://www.pws.org.au/nsw/ Prader-Willi Syndrome Association of NSW helps NSW parents and professionals in the support of people with Prader-Willi Syndrome (PWS). Red Cross Telecross Hawkesbury Penrith and Blue Mountains Suite 1 72-74 Bathurst St Liverpool NSW 2170 Phone: 1800 352 220 Email: wdickinson@nsw.redcross.org.au Web: http://www.nsw.redcross.org.au/Pages/l4tele.html Free service providing daily checks by telephone on the security/well-being of frail aged, disabled or medically at risk clients who live alone. Rett Syndrome Association of NSW Inc 108 Coates Park Road Cobbitty NSW 2570 Phone: (02) 4651 2739 Fax: (02) 4651-1053 Email: jlillis@ispdr.net.au Web: http://www.rett.nesher.com.au/ Provides respite and support to the families with daughters suffering from Rett Syndrome. Raises money for medical research into the cause, treatment and possible cure. Promotes community education. Royal Blind Society P.O. Box 176 Burwood NSW 2134 Phone: (02) 9334 3333 Tollfree: 1300 134 560 Fax: (02) 9747 5993 Email: customerservice@rbs.org.au Web: http://www.rbs.org.au Royal Blind Society (RBS) is the key blindness agency in NSW and the ACT. Through specialist services, we work in partnership with people who are blind or vision impaired and their families, to expand the choices available to them. Royal lnstitute for Deaf and Blind Children 361-365 North Rocks Rd North Rocks NSW 2151 Phone: (02) 9871 1233 Fax: (02) 9871 2196 Email: info@ridbc.org.au Web: http://www.ridbc.org.au/ The Royal Institute for Deaf and Blind Children, Australia's premier provider of education services to children with hearing and/or vision impairment. Schizophrenia Fellowship of NSW Locked Bag 5014 Gladesville NSW 1675 Phone: (02) 9879 2600 Fax: (02) 9879 2699 Email: info@sfnsw.org.au Web: http://www.sfnsw.webcentral.com.au The Schizophrenia Fellowship of NSW Inc. is committed to improving the circumstances and welfare of people living with schizophrenia, their relatives and carers, and professionals working in the area. The Fellowship works to eliminate stigma and create a society that is understanding and accepting, ensure that people with schizophrenia, and their carers and relatives, have access to information and appropriate services and advocate on behalf of people with schizophrenia, their carers and relatives and mental health professionals, for better government policy in the areas of research, treatment, rehabilitation, housing and other relevant areas. Scleroderma Association of NSW PO Box 241 Chatswood NSW 2057 Phone: (02) 9411 3459 Fax: (02) 9411 3009 Email: Scleronsw@aol.com Web: http://www.sclerodermansw.org/ The Association's aim is to provide support and information to people with scleroderma, their carers, and interested professionals by offering seminars, workshops, newsletters, literature, telephone information, counselling and videos. All of the Association's work is carried out on a voluntary basis by members. Self Help For Hard of Hearing People (SHHH) Hillview Community Health Centre 1334 Pacific Highway Turramurra NSW 2074 Phone: (02) 9144 7586 Fax: (02) 9144 3936 Email: shhh@netspace.net.au Web: http://www.shhhaust.org/index.htm SHHH Australia Inc. is a voluntary, non-profit educational organisation dedicated to helping Australians with a hearing loss and whose primary method of communication is through speech. We give information and advice to hearing impaired people and their families, while promoting community understanding about hearing loss. Special Needs Service - Hawkesbury City Council Library Windsor Central Library Dight Street Windsor NSW 2756 Phone: (02) 4560 4467 Fax: (02) Email: library@hawkesbury.nsw.gov.au Web: http://www.hawkesbury.nsw.gov.au The Special Needs Service is a complete library service provided free to individual residents who are infirm, have a disability or prolonged illness in the Hawkesbury Local Government Area. The Special Needs Collections includes large print and talking book, magazines on tape and cassette players for loan. There is also an equipment provision service that includes magnifying glasses, page turners and book stands. All of these are available for loan. Contact the Special Needs Officer and Windsor Library. Spina Bifida Group 1 Fennell Street North Parramatta NSW 2151 Phone: (02) 9890 0990 Fax: (02) 9683 2827 Email: sbgroup@northcott.com.au Web: http://www.northcott.com.au/WebPages/webPage.cfm?PID=323 The Spina Bifida Group of NSW was formed by a group of parents who were having difficulty finding support and information about Spina Bifida. In 1985, at the request of the Group, The Northcott Society assumed responsibility for the provision of services to members. The Spina Bifida Group of NSW, which has over 350 members, operates as a division of The Northcott Society. Spinal Cord Injury Australia P.O. Box 397 Matraville NSW 2036 Phone: (02) 9661 8855 or 1800 819 775 Fax: (02) 9661 9598 Email: office@spinalcordinjuries.com.au Web: http://www.spinalcordinjuries.com.au Spinal Cord Injuries Australia provides consumer based support and rehabilitation services to people with physical disabilities that were begun by the Australian Quadriplegic Association. Spinal Cord is a leading provider of innovative and holistic care programs and facilities designed to support the efforts of people with spinal cord injuries and similar conditions to build fulfilling lives. SCI Australia also works in partnership with communities to promote awareness of spinal cord injuries and similar conditions and to create living and workplace environments capable of embracing, encouraging and supporting such people. The Cleft Palate and Lip Society (Cleftpals) PO Box 475 Lane Cove NSW 1595 Phone: (02) 9294 8944 Fax: Email: rcurry@owfive.com Web: http://www.cleftpals.org.au/ Cleftpals exists to help support people who are involved with cleft lips and/or palates. The Deaf Society of NSW PO Box 1060 Parramatta NSW 2124 Phone: (02) 9893 8555 or 1800 893 855 TTY: (02) 9893 8858 or 1800 893 885 Fax: (02) 9893 8333 Email: deafsoc@ihug.com.au Web: http://www.deafsocietynsw.org.au/ The Deaf Society of NSW works within the community to ensure Deaf people achieve their full rights and fulfil their responsibilities as Australian citizens. The Deaf Society believes that Deaf people should enjoy the same political, civil and human rights as other members of the community and works with the Deaf Community to secure these rights. The Northcott Society P.O. Box 4055 North Parramatta NSW 2151 Phone: (02) 9890 0100 Freecall: 1800 506 071 Fax: (02) 9683 2827 Email: enquiry@northcott.com.au Web: http://www.northcott.com.au/ Today, The Northcott Society provides support and services to over 3,500 individuals and families across NSW. Our aim is to help people with disabilities develop skills, maximise their potential for independence and to participate as full members of the community. Northcott supports people with a wide range of disabilities including spina bifida, cerebral palsy, neuro-muscular disorders, limb deficiency, and other lesser-known conditions. Northcott often provides services for people with rare conditions who are not provided for by other organisations. The Spastic Centre of NSW 252 High St Penrith NSW 2750 Phone: (02) 4732 2700 Email: Web: http://www.tscnsw.org.au/ The Spastic Centre's Children's Services provide support to children aged 0-18 years in New South Wales and the ACT who have cerebral palsy or a similar disability and their families. The Wheelchair & Disabled Assn Of Aust (also known as House with No Steps) 49 Blackbutts Rd Belrose NSW 2085 Phone: (02) 9451 1511 Fax: (02) 9452 1882 Email: headoffice@hwns.com.au Web: http://www.hwns.com.au/index2.htm House With No Steps is a project of The Wheelchair and Disabled Association of Australia, to provide quality support services for people with disabilities. We currently employ over 450 supported employees, and provide services to more than 1400 people with disabilities. Tourette Syndrome Association of Australia Inc. PO Box 1173 Maroubra NSW 2035 Phone: (02) 9382 3726 Fax (02) 9382 3764 Emails: info@tourette.org.au Web: http://www.tourette.org.au/index.php The Tourette Syndrome Association disseminates educational materials in the fields of health care, education and welfare service, provides telephone counselling and operates support groups. We support parent advocacy and other services to help families cope with problems that may occur with TS. Visual Impaired Support Group (PDRC) 114- 116 Henry St Penrith NSW 2750 Phone: (02) 4732 2363 Email: Web: Information, support, encouragement, friendship, social outings, resources and guest speakers for people with a visual impairment. Meetings are held monthly in the Community Connections building, opposite TAFE. Well Wise Women's Café Windsor Library Cnr George & Dight Streets Windsor NSW 2756 Email: Web: Contact: Amanda Higgins 4560 5714 or Gail De Lucia 4578 1622 Well Wise Women's Cafe (WWW Cafe) operates every Thursday from 10.30am to 12.30pm. Provides information on services available for women in the Hawkesbury Area including health, aged services and help as well as information about generic and specific services related to families. Western Sydney Community Forum 62 Railway Parade Granville NSW 2142 Phone: (02) 9897 2677 Fax: (02) 9897 2655 Email: wscf@wscf.org.au Web: Provides information, support and training to community based organisations funded under the aged or disability services programs within the Western Sydney area. |
About News Contact Us Members Websites Hawkesbury Disability Expo '05 |
|
|
|
|
||
Revised: 24 July 2005.
|
© 2002 - 2005 Hawkesbury Disability Forum |